There’s some heavy stuff going on.
As most of you would know by now, severe ME (Myalgic Encephalomyelitis) has effectively prevented Marcelle from taking on any kind of employment for nearly three years. Today was a big day for my girl as her first day with St John Ambulance as a First Aid Instructor. This involved a long drive to Dandenong and return, with full time hours in between, marking the start of a 2-3 week process where she is trained and certified as an instructor, within a group of 7 or 8 peers. Once this process is complete, the workload should become more manageable as it is casual and based around her own availability.
I am not going to go into any detail regarding her physical condition tonight but will instead let your imagination paint the picture. I’m torn between supporting her “never say die” spirit and insisting she withdraw…who wants to see their partner suffer so much for the sake of money? I’ve said before how Marcelle carries an enormous load of misplaced guilt regarding our financial stability and there is no doubt this is the driving force behind this brave effort. To quit early is simply not in her DNA and I know she’ll give this her best shot, but I am seriously dreading the weeks ahead and am fearful of the implications on her health, well-being and happiness. Her lovely mum is arriving on the weekend to help out at home for a week or so, but I don’t know if this will be enough.
If you haven’t already seen this video, watch it and imagine trying to start a new job while battling this illness…it is truly painful to witness.
To add to this, there was no training today. I abandoned cycling into work to help get Gus ready for school while Marcelle prepped herself for Day 1. When I was about to get started on my afternoon session, Gus rang me from home – clearly upset. On his way home from school he had just seen a guy on the tracks nearby, only minutes after being struck by a passing train. There were people there, but no emergency services. With Marcelle still at work, I dropped everything and rushed home so he had someone with him. He was in good spirits and calmer by the time I arrived 20 minutes later, but clearly needed to talk it out. Tragically, the male pedestrian died at the scene…I am only thankful that at the time Gus believed the man was only unconscious. Our thoughts go out to his family and friends.
On a positive note, another supporter of Tough Mudder Mechanics and ME/CFS Australia has stepped forward to make an amazing cash donation. I’ll release more information about this in the next couple of days. I will be putting a fund raising thermometer on the home page too…with my race entry now completely covered, it’s important to share our progress as we drive as much funding to the ME/CFS Australia organisation as possible.
For those who are reading this post with the expectation of finding a workout to throw themselves into, this is what was on today’s agenda. Get stuck into it.
Dynamic effort: Sumo deadlift 10x 2 reps at 85% of 1RM every 60 seconds
As many rounds as possible in 12 minutes of 10 deadlifts at body weight, 10 chin-ups and 20 hanging knees-to-elbows.
Row 3 rounds of 200m, 400m and 600m with rest in between each distance at a 1:1 work/rest ratio
This illness is devastating on so many levels. Tonight was a brutal reminder. Please make a tax deductible donation to ME/CFS Australia.